TitleThe Burn Model Systems outcome measures: a content analysis using the International Classification of Functioning, Disability, and Health.
Publication TypeJournal Article
Year of Publication2017
AuthorsOsborne CL, Petersson C, Graham JE, Meyer WJ, Simeonsson RJ, Suman OE, Ottenbacher KJ
JournalDisabil Rehabil
Volume39
Issue25
Pagination2584-2593
Date Published2017 Dec
ISSN1464-5165
KeywordsActivities of Daily Living, Adult, Burns, Data Collection, Databases, Factual, Disability Evaluation, Disabled Persons, Female, Health Status, Humans, Independent Living, International Classification of Functioning, Disability and Health, Male, Outcome Assessment (Health Care), Psychometrics, Rehabilitation Research
Abstract

BACKGROUND: The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Burn Injury Model Systems (BMS) is a nationwide database that uses patient-reported outcome measures to collect data. Though the outcome measures demonstrate good psychometric properties, the question remains whether or not these measures collect data that encompass the entire experience of burn patients over time.

METHODS: Each meaningful concept included in the BMS assessments was linked to the International Classification of Functioning, Disability and Health (ICF) in order to classify and describe the content of each measure. The linking was completed by two experienced coders. The perspective of each assessment was also determined.

RESULTS: The body function component was most frequently addressed overall followed by the activities and participation component. The component body structures and environmental factors are not extensively covered in the BMS assessments. ICF chapter and category distribution varied greatly between assessments. The assessments were of the health status perspective.

CONCLUSION: This study suggests a need to revisit the item composition of the BMS assessments to more evenly distribute ICF topics and subtopics that are pertinent to burn injury which will ensure a broader but more precise understanding of burn injury recovery. Implications for Rehabilitation A better understanding of the data collected through the Burn Model Systems (BMS) project may contribute to improve data collection tools and ultimately lead to clinical practice innovations and improvements. Clinicians interested in using BMS data for research purposes can better understand what topics are included and excluded in the collection and what perspectives are addressed. This study highlights the need for burn clinicians around the world to lend their expertise to the WHO for the development of a much needed burn injury International Classification of Functioning, Disability and Health Core Set.

DOI10.1080/09638288.2016.1239767
Alternate JournalDisabil Rehabil
PubMed ID27758149
PubMed Central IDPMC5724373
Grant ListR01 HD049471 / HD / NICHD NIH HHS / United States