Since 1994, the Burn Model System (BMS) has been collecting data on long term outcomes of burn survivors of all ages. The BMS identified important domains to include in the data collection through new measures and existing publicly available measures.

Collecting & Coding Data

1. The BMS Data Collection forms (i.e., questionnaires) are located online at the About BMS page and include questions for data to collect from burn survivors at hospital discharge and at follow-up time-points. Please note, the discharge and follow-up forms have different version for use with adults, pediatric self-report, and pediatric proxy (i.e., a report by a parent or care giver). These forms are available in English and Spanish. 
2. The BMS collect follow-up data at hospital discharge, 6-months post-injury, 12-months post-injury, 24-months post-injury, and every 5 years post injury. 
3. The BMS Standard Operating Procedures (SOPs) provide specific information about BMS inclusion and exclusion criteria for participants (SOP #101), guidelines for participant recruitment and consent (SOP #102), follow-up of participants (SOPs #103 and #105), and data quality guidelines (SOP #104). These SOPs can be found at this webpage: https://burndata.washington.edu/standard-operating-procedures. 
4. Coding of each data point, along with some information on scoring and guidance for data collectors, is provided in this document as well as the BMS Data Dictionary, which can be found at the Request BMS Datasets page under the heading titled “For Researchers Interested in the Data.”

Scoring Data

In recent years, the Burn Model System has moved toward the use of standardized, publicly available measures, so that the instruments and scoring algorithms are accessible to all with no licensing fees. Below are links for more information about the main outcome measures collected by the BMS:

1. PROMIS-29, PROMIS-25, NIH Toolbox and NeuroQOL measures:http://www.healthmeasures.net/explore-measurement-systems/overview 
2. Satisfaction with Life Scale (SWL):https://www.sralab.org/rehabilitation-measures/satisfaction-life-scale 
3. Community Integration Questionnaire Social Integration Subscale (CIQ SIC)https://www.sralab.org/rehabilitation-measures/community-integration-questionnaire 
4. VR-12:https://www.rand.org/pubs/research_reports/RR1844.html 
5. Post-Traumatic Check-List-Civilian (PCL-C)https://www.ptsd.va.gov/professional/assessment/adult-sr/ptsd-checklist.asp#obtain 
6. Post-Traumatic Growth Inventory (PTGI):https://www.emdrhap.org/content/wp-content/uploads/2014/07/VIII-B_Post-Traumatic-Growth-Inventory.pdf