The BMS NDSC works to standardize procedures for data collection, entry, use and reporting. The following Standard Operating Procedures (SOPs) were developed collaboratively with the involvement of the directors from all BMS Centers and apply to both internal and external use of data from the BMS Database. Click on any of the links below to download a PDF of the corresponding SOP. These reference PDF documents were generated from original Microsoft Word source files and are provided for informational purposes. If you encounter any accessibility barriers or require an alternative format, please contact burndata@uw.edu and we will provide the information in an accessible format.
Data Collection
- SOP #101: Identification of Subjects
- SOP #102: Guidelines for BMS National Database Recruitment, Consenting, and Withdrawal of Participants
- SOP #103: Guidelines and Strategies for Maximizing Follow-up
- SOP #104: Data Quality Guidelines
- SOP #105: Guidelines for Collection of Follow-up Data
- SOP #106: Obtaining Cause of Death
- SOP #107: Handling Suicidal Ideation
- SOP #108:Resolving Coding Issues`
- SOP #109: BMS Data Collection Form Storage
- SOP #110: BMS Genetic Data Collection
BMS Operations
- SOP #601: NDSC Data Use Agreement
- SOP #606: Performance Target Monitoring
- SOP #608: Branding and Authorship
- SOP #609: Module Project Procedures
- SOP #610: Data Collector Certification
- SOP #611: BMS Approved Collaborative Relationships with External Partners
Joint NIDILRR Model Systems
- Model System Guidance Document #1: Harmonization of Follow-up Rates
Previous BMS Inclusion Criteria
(SOP#101 represents the current inclusion criteria)